[read ebook] Beyond Breathing
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Review 5.0 out of 5 starsExcellent read!May 8, 2017Verified PurchaseMargarete recently spoke at my company and highlighted aspects of her book. I work for a company that does research for CF and other rare diseases. I am not a scientist but stories like this are what motivate me to go to work. I was touched by Margarete and her willingness to do what she does after such sorrow and loss. The penny story is worth the read. Be prepared to shed a few tears while you read this story of a telling mothers joy, loss, triumph and her belief Jena is always with her and in some ways all of us.Judy5.0 out of 5 starsInspiring!June 27, 2014Verified PurchaseIf one has never been touched personally by Cystic Fibrosis, Beyond Breathing will take the reader on an exhaustive journey through the diagnosis, treatment and sadly the untimely death of one so young. Ms. Cassalina is an amazingly articulate writer who is capable of relaying to the reader the despair felt by a parent of a child with this disease, in her case, both her children. Ultimately, the reader will gain insight as to how Margarete, Marc & Eric have become some of the fiercest, strongest and most devoted fighters against this disease. One will never view life's trivial annoyances in the same light after completing this book. My personal suggestion to the reader is to block out some uninterrupted time, you won't want to put it down and read with a full box of Kleenex close by!JD5.0 out of 5 starsA Must Read!April 17, 2015Verified PurchaseThis book is a must read! An intimate view into the life of a family dealing with cystic fibrosis. You will meet and genuinely fall in love with them, especially with Jenna. I can promise you that reading it will change your life in some way. You will never look at a peppermint patty or a penny the same way, I can assure you of that. Thank you to Margarete for sharing your Jenna with the world. Read more From the Author This book is my journal, my personal account of my life.It is my gift to my daughter to pay her back for all the gifts she gave me. I'll miss you forever and a day.I invite you to read Beyond Breathing and meet my incredible daughter in the pages that unfold her life and my heart. Thank you. Read more From the Inside Flap Dedication�To God's grace, His gift, my daughter, Jena; in so many ways you left us breathless� Read more From the Back Cover Dr. Smarty-Pantsgave me ten minutes.Tenminutes.That'sall I get to tell Jenaeverything in my heart. To tell her how much joy she's brought me. To tell herhow much I love her.Ihad ten minutes.Itold her all those things. I told her that if I could be just a fraction of theperson she was, I would be the most incredible person ever. I told her that ifI could bring half of the smiles and laughter she did I would be honored tostand in her shadow the rest of my life. I cried. I couldn't stop crying. As thetears relentlessly streamed down my face, I apologized for any and every fightwe ever had. I apologized for any time she was mad at me or I was mad at her. Itold her again and again how much I loved her, how proud I was of her, and howmuch she'd taught me that I would never be able to repay. I cried. I wasshaking. I was terrified. I couldn't believe I was doing this, I couldn'tbelieve that I had to.Try to breathe. Read more About the Author Margarete is an award-winning author, widely known motivational public speaker, freelance writer, and a national advocate for The Cystic Fibrosis Foundation; but most importantly she is a mother of two children, Eric and Jena, both born with cystic fibrosis.Margarete has been a dedicated volunteer of the Cystic Fibrosis Foundation since 1991.�She has served as National Leadership Council Member, National Public Advocacy Co-Chair, and National Volunteer Leadership Co-Chair.As National Public Advocacy co-chair, Margarete helped pioneer volunteer advocacy efforts, leading volunteers to Capitol Hill, and helped the launch of the Cystic Fibrosis Congressional Caucus which assisted in getting newborn screening in all 50 states. Regionally, in New York, she has served as Board Member of the Northeast Albany CF Chapter.Locally, Margarete organizes and runs numerous events to increase awareness and has raised millions of dollars for The Cystic Fibrosis Foundation.Margarete speaks straight-from-the-heart about life and cystic fibrosis in Beyond Breathing, a memoir written after her daughter Jena 'moved up' to heaven in 2006 at the age of 13.In her new book, See You at Sunset, Margarete bridges you from her non-fiction life into the fictional world of her imagination while still adhering to her passion of bringing awareness to cystic fibrosis.Margarete has spoken to Fortune 500 Companies such as American Airlines, Novartis, and ADP. She has been interviewed by The New York Times, Hudson Valley Magazine, and Z100 NYC. Margarete has been seen on interviews with PBS's 'One on One with Steve Adubato' and CableVision's 'Health View' and has spoken numerous times on CBS Channel 2 News.She lives in NY with her husband Marc, and continues to pursue life with purpose, meaning and passion. Read more
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